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Lyla posting…

Through humor, you can soften some of the worst blows that life delivers. And once you find laughter, no matter how painful your situation might be, you can survive it.” — Bill Cosby

I thought I would share this quote as a reminder to try to keep a humor in your life even through the dark times;)


Lyla Posting……

There are times where it feels as though my world is crashing down on me and I’m being pulled in about 5 different directions. My heart is racing, chest pounding, dizzy, vision blurry, palms sweaty and I feel like screaming.

I’ve found out that putting my headphones on and jamming out to my ipod has helped me immensely during these difficult times. It gives me “ME” time!!! “ME” time is very important when you are dealing with the stressers of a dysautonomia life. Appointments, parents, friends, strangers,family and health care workers are constantly asking questions/have expectations or asking for you to be somewhere or do something.  When I’m just spending time with myself, my own thoughts, listening to my favorite music, I’ve figured out that my thoughts and feelings never go towards my disorder, stresssors or negative thougths.

So, I  guess I’m letting everyone know that when you’re going through a rough time, you might want to try to have some “ME” time even if it is 5 minutes. This is avoiding and avoiding doesn’t solve any problems, but it does fix a temporary issue and can help to clear your mind or put it in a more positive space.


Lyla here,

“While walking in the midst of despair from the day to day struggle with dysautonomia; there still lingers that ray of hope that promises a better day tomorrow…..”

I recently came up with this quote during a very dark time with my dysautonomia. I wanted to share it with others because it has helped me get through another day!